Members of the Roster have the opportunity to participate in clinical trials and research studies. A brief description of research studies that are currently recruiting participants is provided below.
- None at this time. Pleae check back later.
In addition to the open studies listed above, the Registry has recently recruited for the studies listed below. The studies listed below are not currently recruiting participants.
- Huntington Disease Patient Care Survey
As a participant in the National Research Roster for Huntington Disease Patients and Families (HD Roster) you are invited to participate in the Huntington Disease Patient Care Survey. This survey is being conducted to obtain the names and addresses of any medical doctor or professional involved in the care or treatment of Huntington Disease. The information collected in the survey will be used to help make researchers, physicians and other HD care professionals aware of current HD research. For more information on the survey, read this brief statement. The survey is closed at this time. Please check back again for updates.