| The National Research
Roster for Huntington Disease Patients and Families was
established in 1979 at Indiana University. The goal of
the Roster is to help researchers learn more about Huntington
disease. To accomplish this goal, the Roster has involved
nearly 3,000 families in Huntington disease research.
Huntington Disease Clinical Research Symposium
November 21, 2009
Attention Roster participants:
I regret to inform you the “Quality of Life Scale Development” study has been temporarily placed on hold. If you are still interested in participating in this study, please return your reply sheet with your current address and/or email address, you will be contacted once the questionnaire is available again.
Sorry for the inconvenience.
Shelley
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