The Hereditary Disease Foundation (HDF) aims to cure HD by supporting scientific research. The website provides information about ongoing research and lists news/events along with resources for HD.
- Huntington Disease Society of America (HDSA)
The Huntington Disease Society of America (HDSA) is a voluntary health organization dedicated to improving the lives of people with HD and their families. To learn more about information and support for HD, ongoing events, research, advocacy, and local HDSA Chapters in your area, visit the HDSA website.
- Huntington Study Group
The HSG is made up of clinical researchers worldwide who care for Huntington disease ("HD") patients and families and who are working diligently to combat this disease.
- Help 4 HD International
Features a web-based radio program, "The HD View".
- National Institute of Neurological Disorders and Stroke (NINDS)
The National Institute of Neurological Disorders and Stroke (NINDS), a subset of the National Institute of Health (NIH), provides general information, treatment, prognosis, ongoing research, and resources for HD.
Move - Worldwide Education and Awareness for Movement
We Move is a comprehensive resource for information about movement disorders, including Huntington disease.
Genes Your health
Your Genes Your Health is a multimedia guide to genetic disorders. It provides a unique and helpful way of learning more about HD and other genetic conditions.
HOPES - Huntington's Outreach Project for Education at Stanford University
HOPES is a student-run project at Stanford University that provides information on the scientific aspects of Huntington disease.
- Caring for People with Huntington Disease
Information about caring for people with HDdeveloped for families and professionals.
- Huntington Disease Advocacy Center (HDAC)
The Huntington Disease Advocacy Center (HDAC) website provides information for individuals and families with HD. It includes a message board and online support.
- International Huntington Association
Federation of national voluntary health agencies
- Nutrition for People affected by HD
Nutritional information and resource links on aspects of nutritional care for people with HD
- Huntington Disease Lighthouse
The Huntington Disease Lighthouse provides current information on treatments, drugs, support and patient resources.
- How to select your health care agent or proxy
- Guide for Healthcare Proxies