hdroster
About The Roster About HD Family Participation
For Researchers Links
The National Research Roster for Huntington Disease Patients & Families
 
 
Important Facts About the Roster
Here are some important facts about the Roster:
  • It is totally VOLUNTARY.
  • You can withdraw at any time.
  • No information about you will be given to anyone without your WRITTEN permission.
  • No one, including your own family members can find out if you are participating in the Roster without your WRITTEN permission.
  • You decide if you want to participate in any available research opportunity. You do not have to participate if you are not interested.

For more information, dowload a roster brochure.

To become a member of the Roster, or if you have any questions, please call the Roster at 1.866.818.0213 or email us at hdroster@iupui.edu.

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What is the Roster?

What does the Roster do?

Researchers working with the Roster

Important Facts about the Roster