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| The Roster is
a unique nationwide information resource dedicated to
assisting scientific research on Huntington disease. The
National Research Roster for Huntington Disease Patients
and Families was established in 1979 at Indiana University
in response to a recommendation from the Commission for
the Control of Huntington’s Disease and its Consequences.
The National Institute of Neurological Disorders and Stroke,
a branch of the National Institutes of Health has funded
the Roster since its inception. The Roster computerizes
the names of families, including information about the
history of HD in the family (family trees) and other related
data. This information identifies HD patients and families
who are interested in participating in research projects.
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