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The National Research Roster for Huntington Disease Patients & Families

The National Research Roster for Huntington Disease Patients and Families was established in 1979 at Indiana University. The goal of the Roster is to help researchers learn more about Huntington disease. To accomplish this goal, the Roster has involved nearly 3,000 families in Huntington disease research.

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Copyright © 2009, Indiana University. All rights reserved.

Contact the HD Roster
If you would like further information on the HD Roster, contact the study coordinator by email at hdroster@iu.edu or by phone at 866.818.0213. Written inquiries should be sent to: HS 4000, 410 West 10th Street, Indianapolis, IN 46202.		  
Information for Research
Scientists interested in
studying HD may submit
requests for information
contained in the Roster.
Learn More >		    

About HD
• It is totally VOLUNTARY.
• You can withdraw at any time.
• No information about you will be given to anyone without your WRITTEN permission.
• No one, including your own family members can find out if you are participating in the Roster without your WRITTEN permission.
• You decide if you want to participate in any available research opportunity. You do not have to participate if you are not interested.