The National Research Roster for Huntington Disease Patients and Families was established in 1979 at Indiana University. The goal of the Roster is to help researchers learn more about Huntington disease. To accomplish this goal, the Roster has involved nearly 3,000 families in Huntington disease research.

Huntington Disease Patient Care Survey
As a participant in the National Research Roster for Huntington Disease Patients and Families (HD Roster) you are invited to participate in the Huntington Disease Patient Care Survey. This survey is being conducted to obtain the names and addresses of any medical doctor or professional involved in the care or treatment of Huntington Disease. The information collected in the survey will be used to help make researchers, physicians and other HD care professionals aware of current HD research. For more information on the survey, read this brief statement.